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Ilana Jacqueline

Board Member

Ilana Jaqueline is a
 best-selling author, marketing consultant and professional patient advocate based out of Boca Raton, Florida. She is the voice behind the award-winning blog,
 Let’s Feel Better and the self-help book Surviving and Thriving with an Invisible Chronic IllnessShe served as the Founder and Editor-in-Chief of Today’s Teen Online, managing the entirely telecommuting staff of 80 writers. She ran her own public relations company, About Time PR from 2010-2016 helping small businesses, TV personalities and athletes to jumpstart their careers with mainstream media mentions.

As a rare and chronic disease patient and advocate she served as the Managing
 Editor for Global Gene’s The RARE Daily for 
five years. She groomed, motivated, and managed a large team of bloggers and wrote in-depth features and interviews. She then became the Manager of Patient Advocacy at FDNA. During her time there, she developed the Genomics Collaborative program, which provided a way for patients, advocacy groups, doctors, researchers, labs and other biotechnology companies to utilize the company’s unique technology to further disease understanding.

In 2018 she joined the boards of RUN (Rare and Undiagnosed Network) and IDA (Invisible Disabilities Association) to help continue her mission to generate awareness and support for those with chronic invisible diseases. She has a regular column in the health magazine IG Living and has a long history of freelance writing. Some publications she has worked with include The Huffington Post, CosmopolitanMarie ClaireCrowdMed, AOL, xoJane, xoVain, Everyday Health, WEGO Health, Patient Worthy, MultipleSclerosis.net, Mashable, PharmaPhorum.com, The Boca Raton Observer, Boca Raton Magazine, Boca Delray Life, The Palm Beach Post, The Sun-Sentinel, The Miami Herald, Palm Beach Illustrated, The Happy Herald, Materniteens, and Lemondrop.

Ilana speaks at medical, patient, and pharmaceutical conferences  as well as consults with companies on how the patient voice can improve the design of healthcare.

 
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Tina Aswani Omprakash

Advisor

Tina is a Crohn’s patient and health advocate for the chronically ill and disabled. She is based out of New York City. Via her writing, social media advocacy and public speaking engagements, she spearheads public health causes, including those proposing research for and creating awareness for inflammatory bowel disease (Crohn’s and ulcerative colitis), life-saving ostomy surgery, gastroparesis, fistulizing disease and initiatives supporting health concerns for women and racial, ethnic & sexual minorities. A big aim of hers is to spread awareness around the importance of clinical trials and how they create hope for a brighter future for patients. Tina is a student of Public Health at Mount Sinai’s Icahn School of Medicine. She maintains a blog and social media advocacy platform called Own Your Crohn’s in which she shares her own experiences in addition to others’ stories to empower patients to live their best lives possible. Tina’s overarching aim is to normalize the rhetoric around chronic illnesses and disabilities in order to help patients own their ailments to live fuller, happier lives.

 
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Ryan Prior

Advisor

Ryan Prior is a journalist and social entrepreneur. After graduating Phi Beta Kappa from the University of Georgia, he raised $150,000, built a team and a company, and set off across the US co-directing, producing, and writing the feature-length documentary film Forgotten Plague. The film was hailed a “Must See Documentary” by the Huffington Post, screened around the world, and is available on Amazon Prime, iTunes, and Google Play. The film became central to global ME/CFS advocacy efforts.

As a patient and advocate for those suffering from chronic fatigue syndrome/myalgic encephalomyelitis, he is the founder of the Blue Ribbon Foundation and serves on the Board of Directors of the #ME Action Network, the largest international grassroots organization dedicated to ME/CFS activism. In that capacity, he’s led the creation of the Blue Ribbon Fellowship, which awards medical students opportunities to work with top ME/CFS physicians and researchers. As a journalist, his work has been published by the Daily Beast, USA Today, CNN and others. He currently works at the CNN World Headquarters in Atlanta, as a writer on the CNN.com Trends team.

 
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Marc Summers

Board Member

Born and raised in Indianapolis, Indiana, Marc Summers is a television icon with a successful career both in front of and behind the camera. After graduating college, he lived in Los Angeles where he worked as a comedian at The Comedy Store and The Improv, later combining his comedy and magic at the famous Magic Castle. Marc would later become the Host/Producer of Nickelodeon’s “Double Dare” and “What Would You Do?” as well as a Correspondent and Guest Host on ABC’s “Home Show” where he would cover both human interest and hard news stories, featuring segments dealing with everything from the Gulf War to the Branch Davidian stand-off in Waco. 

For the last 11 years, Marc has hosted the longest running show on Food Network, "Unwrapped”. He has also hosted "Next Food Network Star", "Ultimate Recipe Showdown", and many specials for the channel.  Summers is also an Executive Producer of "Dinner: Impossible", "Food Feuds" and "Restaurant: Impossible". In addition to his other projects, Marc hosts "Price Is Right Live" and "Family Feud Live" in Atlantic City, Las Vegas and other casinos across America. 

 
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Janell Havey

Board Member

Janell has been working as an occupational therapist for over 15 years. She joined the College Internship Program in 2009 and provides one-on-one treatment for students with Asperger’s Syndrome making the transition from high school to an academic or career path. Janell is able to work individually with students in their environments to develop solutions to the challenges students face during this important transition time of their life.

Janell graduated from Washington University in St. Louis in 1998 with a Masters in occupational therapy. Her undergraduate degree is in Recreational Therapy from Indiana University.