Founder & Executive Director
Sneha is a junior at Indiana University. At age 6, she was diagnosed with ulcerative colitis, which she has successfully battled with the help of several major surgeries. She founded the Crohn's and Colitis Young Adults Network, a nonprofit organization to connect young adults with inflammatory bowel diseases around the world. Sneha is a part of the Pfizer advisory board, an Eli Lilly consultant and advocates with the United Nations for the third sustainable development goal, good health, and well-being. Sneha writes for media platforms such as U.S. News and World Report.
In addition, she is a motivational speaker and has spoken on national television on Capitol Hill. Her advocacy efforts have been broadcast on both television and radio, and she was named to be one of the 33 most influential teenagers in 2018, as a Global Teen Leader. She also recently created and now chairs Indiana's first disability caucus and is on the International Women's March Disability Caucus. Sneha is overseeing the national expansion of the Health Advocacy Summit. In her spare time, Sneha is an avid wilderness advocate and enjoys mountain climbing. She most recently climbed Mount Kilimanjaro in December.
Director of Operations
Sydney is a chronic illness advocate and an ambassador for the Chronic Disease Coalition. In 2016, Sydney received her bachelor’s degree in political science with a concentration in international relations as well as an associate degree in social and behavioral science. She joined the Health Advocacy Summit in the fall of 2018 as the Director of Operations and the Pilot Director of the California Summit.
At 18 years old, Sydney was diagnosed with a rare autoimmune disease called juvenile dermatomyositis. Over the next several years, she was also diagnosed with lupus, Sjogren’s syndrome, and postural orthostatic tachycardia syndrome. Sydney understands the isolation and sacrifice faced by young adults living with serious health conditions, which is why she wants to bring people together and help other young patients find their voice.