Co-founder & Executive Director
Sneha is a junior at Indiana University. At age 6, she was diagnosed with ulcerative colitis, which she has successfully battled with the help of several major surgeries. She founded the Crohn's and Colitis Young Adults Network, a nonprofit organization to connect young adults with inflammatory bowel diseases around the world. Sneha advocates with the United Nations for the third sustainable development goal, good health, and well-being. She writes for media platforms such as U.S. News and World Report and has been published by the Mayo Clinic and Center for Health Journalism.
In addition, she is a motivational speaker and has spoken on national television on Capitol Hill. Her advocacy efforts have been broadcast on both television and radio, and she was named to be one of the 33 most influential teenagers in 2018, as a Global Teen Leader. She also recently created and now chairs Indiana's first disability caucus and is on the International Women's March Disability Caucus. Sneha is overseeing the national expansion of the Health Advocacy Summit. In her spare time, Sneha is an avid wilderness advocate and enjoys mountain climbing. She most recently climbed Mount Kilimanjaro in December.
Co-founder & Operations Director
Sydney Reed is a patient advocate based in Northern California. At age 18, Sydney was diagnosed with juvenile dermatomyositis, a rare autoimmune disease. Since then, she has also been diagnosed with lupus, Sjogren’s syndrome, and postural orthostatic tachycardia syndrome (POTS).
As an undergraduate, Sydney focused her studies on humanitarian and human rights law and participated in advocacy efforts against human trafficking and violence against women. In 2016, she earned her bachelor’s degree in political science with a concentration in international relations as well as an associate degree in social and behavioral science.
Sydney is currently an ambassador for the Chronic Disease Coalition and a young adult representative for the Rare Disease Legislative Advocates. Additionally, Sydney is a contemporary artist and illustrator. Her passion for art has become an essential part of maintaining her quality of life and coping with her conditions. She hopes to foster awareness by creating compelling images that reflect the experiences of those living with chronic illness.